Through the distinctive narratives of sixteen persons whose legal capacity has been painfully renounced because of their psychosocial or intellectual disability, this immensely provocative exhibition authored by Bulgarian illustrator, Nadezhda Georgieva, and award winning journalist and human rights activist, Yana Buhrer Tavanier, featuring emotive art works by South African artist Daniel Mosoko which recount the recent Life Esidumeni tragedy, conveys a strong call for legislative reform. The exhibition is in addition infused with poignant vernacular audio narratives of South Africans living with a psychosocial or intellectual disability that vividly express the painful reality of a deeply vulnerable and marginalised community.
On 19 June 2017 - I Decide = I Am, which has been exhibited in Ireland, Switzerland, Peru, Bulgaria among other countries, as a creative and emotive vehicle for raising awareness of the many forms of discrimination faced by persons with psychosocial or intellectual disabilities pursuant to being deprived of legal capacity, opened here in South Africa. The exhibit calls for law reform in accordance with Article 12 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) which affirms unequivocally that all persons with disabilities have full legal capacity and are entitled to equal recognition before the law – which right is indispensable to the exercise of the right to access to justice guaranteed by Article 13.
The exhibit was officially launched in South Africa at an opening event held at the head offices of the South African Human Rights Commission (SAHRC). Jacquie Cassette, National Practice Head of the Pro Bono Practice, took part in a panel discussion at the opening in which she presented on the current legal position in South Africa regarding the legal capacity of persons with psychological or intellectual disabilities. Jacquie reiterated the urgent need for law reform here in South Africa to safe guard the rights of persons with psychosocial and intellectual disabilities through appropriate mechanisms that recognise and promote the inherent dignity, equality and autonomy of affected persons.
Notwithstanding that South Africa unreservedly ratified the UNCRPD and its Optional Protocol in 2007, South Africa has yet to take any concrete steps towards reforming its laws regarding the capacity of persons with psychosocial or intellectual disabilities in conformity with Article 12. Article 12 requires governments to replace guardianship models with supported decision making models that give effect to the will and preference of persons with a psychosocial or intellectual disability to the full extent possible. Despite having been a signatory to the UNCRPD for almost a decade, our legal system continues to follow what many regard as an outdated “medical” / “substituted decision making” model in terms of which persons considered by the law to be “mentally ill” or “unable to manage their affairs” are not recognised as having legal capacity and require formally assigned curators or administrators to make substituted decisions on their behalf.
Prior to being exhibited at the 5th Annual African Disability Conference on 7 and 8 November 2017 at the Centre for Human Rights at the University of Pretoria, the exhibition will tour the following organisations on monthly rotations: SAHRC for the remainder of June 2017; South African Federation for Mental Health in July; the Pan African Parliament in August; Gauteng Premier’s Office in September; and it will finally make its way to the offices of CDH in October 2017, where a closing ceremony will take place.